Beautifully Broken

Good afternoon readers, I hope today finds you in good spirits, as its raining and damp outside, My husband and I plan on going to our cities tree lighting this evening, and make more Precious Christmas memories. I hope your living in the moment, and not getting overwhelmed by the holiday’s celebrations. Always make time for yourselves. The topic I want to address is “How do you manage the holidays, when you’re newly diagnosed?”   If only I knew then, what I know now, how many of you have found yourselves asking this question. How you handled the holidays when you were first diagnosed verses now, and what you know about IC.I know I handled it differently, as im sure most of you did too. Getting a diagnosis like Interistsial cystitis is mind blowing, dealing with the Christmas season can feel overwhelming, but what happens, when they coincide together?   Its important to always take care of yourself, especially during the holidays, and not loosing yourself in the hustl...

    Good afternoon readers; I hope and pray today your pain levels are manageable. AS a blogger I think its very important to not just write about issues I feel are important, but also write about the hot topics that are being discussed within the IC community. I realized that PFD Pelvic floor disorder/therapy is becoming more prevalent among those I talk to. In addition, I want to tie in my experiences.    Do you ever feel like your life revolved around your bladder pain? I think its safe to say we all do. But what ive learned is the more   educated we become about IC and all its overlapping conditions, the louder our voice becomes when we’re trying to find the specialist that we need.    Sadly not all health professionals recognize pfd( pelvic floor disorder) as a condition. The more educated you become of what PFD is and how it interacts with your bladder, you ask yourself, how can they not see the connection. I for one had never even ...

            Good Evening my beloved readers, I pray that your pain is manageable tonight. Another new month is upon us and as I was coming out of church this morning, to my amazement snow was falling from the sky. I will be honest I do not like the cold weather one bit, but it was so pretty to watch the snowflakes fall from the sky. Tonight’s topic is” how chronic illiness of a Parent affects the precious children in our lives.”     When you are a parent or Grandparent or even a Godparent as I am or aunt or Uncle; when the child in your life is sick, it breaks your heart to see them not feeling well. You do all you can to make you are your little one is taken care of and loved on and your there for them through their sickness. Even though its not you, when they are sick, you feel the pain, you feel the hurt because you love that child more than life itself. Well in a very similar way, when    we are s...

       Hope my readers are all having a low pain day. It has been a raining most of the day, but im keeping my spirits up and focusing on my blessings. Tonight we were going to go to the gym, but are going tomorrow afternoon instead because my hubby was feeling a bit under the weather. This entry in my blog is Dedicated to my Mom, of course, she has no idea that I am writing this, but I really wanted to let her know in a very special and personal, yet public way what her support and love has meant to me through my ordeal of dealing with a chronic disease.   My mom is an incredible woman, a mentor, a best friend and someone who has always been there for me no matter what I have gone through. She has gone through her own struggles, but she always reaches out to those around her. She is always thinking of others above her own needs and wants!   I realize how blessed I am, to have the kind of relationship with my mom that I do .I know many are not not ...

Hello readers. This poem speaks; what every IC patient has felt, at one time or another. When those in our lives cannot empathize or understand our pain and where we are coming from. I hope you find encouragement from this piece I wrote and you can relate to the deep meaning behind these words.               Look at me look into these eyes. They are the window to my soul. My eyes tell my story.        What do you see when you look into tired eyes of mine? Look close, can you see? Look at these eyes; they have cried so many nights alone and afraid, afraid to show their face, afraid to take off this mask. We have felt tattered, torn, and completely worn.      At times, you turn away, you turn from my heartfelt need, my need of someone willing to stay, to not turn and walk away.        We sit alone, up all night, you may think this on...