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Showing posts from March, 2014

Do you Ever Feel Invisible and Isolated?

       I know I haven’t written in my blog in a few weeks, I’ve missed writing and hearing from you all, more than I can say. I’ve been having a very tough time lately and I was taking some time to pull myself together. Some days we get so tired of dealing with all this, but I had to pull myself up from the boot straps and keep pressing on.   Tonight’s topic is “Feeling Invisible “Anytime I feel overwhelmed, and weary I turn to my writing because it’s my escape, my outlet   from this life, but its my way to   work through all the emotions I feel raging inside of me.          How many of you have felt Invisible? As though you’re standing in a crowded room and no one seems to notice that you’re crying, everyone just walks by, as if you’re not even there. You have tears streaming down your face, and you’re screaming at the top of your lungs, and no one even looks your way. Have you felt like that? So many of ...

The Stress Factor and How Does It Affect IC~

               Let’s set a scene. Your tired and frazzled, the car just broke down for the 3 rd time in a month, your boss is giving you a tough time, and you’re faced with deadlines and late nights. The kids just can’t get along, if only you could escape to a remote island far, far away from the hustle and stress of the everyday life. Or you’re trying one treatment after another and nothing seems to touch your pain. Your facing yet another surgery and have to figure how, how do you manage if you will be out of commission for a couple of weeks.              How many of you have experienced any given situation, and the worry of the what ifs almost paralyze you with fear or anxiety and you don’t know the outcome, you’re trying so hard to remain strong, knowing that a lot is riding on you being the rock, you being there for your spouse, and if you have c...

~An Attitude of Gratitude~

     Good evening    my readers. I hope tonight you are in good spirits, though I know there are many of you who are having such a tough time. If I can do anything to put a smile on your face, even from across the miles that lay between us, I hope I can at least encourage you in the midst of what you’re dealing with?     The last few days have been tough on me, my pain was terrible and I did all I could to just get out of bed. I finally was able to get up and I looked into my husband eyes, and I felt thankful beyond words to be alive.Tongights topic is “Having an Attitude of Gratitude, in the midst of our Storms” Like many of you out there I’ve had my share of heartache and pain, of all kinds, but I’ve also had my share of JOY and happy times and I have much to be thankful for.     When pain of any kind ravages our bodies and souls, it’s hard to see the sun through the rain clouds that gather. My pain was so severe  ...

Find What you Love and Love What you Do~

            Good afternoon beautiful Family. How are your pain levels today? I feel blessed today I woke with little pain, so I will be thankful for that, and just live in the moment, and enjoy every last drop of today’s beauty. Today’s topic is “Find what you love and Love what YOU Do” it’s about finding your purpose, something to Reach for, something to aspire after. It’s about seeing your dreams come true.      There is so much pain that surrounds IC or any chronic illness for that matter, so we need to search until we find what gives us the greatest joy, and once you find that, hold onto it and don’t let it out of your grasp. This entry is about how I found what I love, and let me tell you I’m love what I do. I will share how my dream is coming true, our dreams and hopes are the hidden wishes that our hearts make.       It’s not an easy process dealing with IC, but when you can find...

Which Treatment Is for Me?

Good afternoon readers, Today I’m addressing the topic” What treatments are right for me?”So are you asking yourselves this question? You might be just starting out on this journey and are swamped with input from all you read, your doctors and your IC family, or are you at a crossroads trying to figure out what the next best step will be. You noticed I didn’t say which treatment is best, because there are NO best treatments, what works for one might or might not work for another. So that’s why I chose to title this entry which treatments are for me?      Wherever you at on this road, you’re feeling desperate for answers. I want to share with you my journey of treatments I’ve taken so far. And then briefly discuss how to go about deciding that vital answer to that question, which treatment will work for you?      My journey with treatments began with some injections into my lower back and internal pt. the injections did not work. I was ref...