Beautifully Broken

    I need to speak my mind on this whole Dr. Drew ordeal which happened last week, on his radio talk show Love Line. When I first heard the very words that came out of his mouth, I was flabbergasted and disgusted, that a psychologist, someone who is supposes to help people, would not think before he spoke. When you’re a therapist, you need to be even more aware of what you say, how you say and make sure that the info and advice and resources you dish out you can back up with solid facts.    I have Interstitial Cystitis and fibromyalgia and I need to be tested for endometriosis went 10 long years before I got my IC diagnosis. Dr drew had not leg to stand on when it comes to giving advice about IC and fibro, he not a Urologist or a gynecologist. Many women who have IC also have fibro, not all, but a lot. They are often misdiagnosed as each other. They are very REAL and very deli bating diseases with proven pathology to back these up. THEY ARE NOT in our heads. ...

        Good evening readers….I’ve finally recovered from my surgery just over a week ago. Though I’m tired and my fibro is acting up, I’m in good spirits. This entry is not going to be one of regular entries pertaining to IC. This entry will share with you about an amazing woman that I had the opportunity to not just know, but who was my mother in law. Yesterday April 15 th was the 12 th anniversary since my beloved, mother in law Kathy went to her Eternal home to be with Her Lord.       Here it is 12 years later, and I still miss her as if it was just yesterday. I think of her often, she comes to my mind at the most unexpected times. As thankful as I ‘am for the time I had her in my life, she was taken from me too soon. Only 3 years after don and I said I do. God called her home.        I reflect on the amazing strength of this woman, and the lasting legacy that she left behind. She had a love f...

                             Good evening Beautiful Courageous Warriors, I hope today was a Good day for you. I want to give you all a personal update on what’s going on in the course of my treatment, in my IC journey. The thing I Love about my Ic family is we share in each others struggles, we are there for each other through our tough days, we pray for one another as were getting ready for our surgeries, or procedures. So im asking you all for prayer as I get ready to have my third hydrotension, cystoscopy and for the first time my uro will be doing urethra dilation this coming Tuesday April 8 th .       My very first one was in 2010.My last one was in September of last year, which showed in my scans that my IC had progressed, it appears that I may have hunners ulcers.I know my IC has got worse, the pain,   and...

      Good evening Readers, I hope and pray that your pain levels haven’t been too bad today. The last few days have been ok for me pain wise with my IC .My fibromyalgia was bothering me more, with spasms shooting up and down my legs. The last few days we’ve had a few nice weather days, its really starting to feel like spring, a time of newness and renewal. The buds are starting to bloom; I hear the birds singing in the trees overhead. The sky has been so blue, I love it, and it’s my favorite season. I feel at peace, a peace that passes all understanding, a peace that could only come from God.      Tonight my topic is “The Importance of Advocating for IC” and what are the reasons why we advocate. How can we raise more awareness? We all can be part of this important cause, each story, each face, each voice matters; there is not one that’s too small.      This entry will be a long one because I have a lot to say abo...