Personal update and Upcoming Surgery on April 8th~



                             Good evening Beautiful Courageous Warriors, I hope today was a Good day for you. I want to give you all a personal update on what’s going on in the course of my treatment, in my IC journey. The thing I Love about my Ic family is we share in each others struggles, we are there for each other through our tough days, we pray for one another as were getting ready for our surgeries, or procedures. So im asking you all for prayer as I get ready to have my third hydrotension, cystoscopy and for the first time my uro will be doing urethra dilation this coming Tuesday April 8th.
      My very first one was in 2010.My last one was in September of last year, which showed in my scans that my IC had progressed, it appears that I may have hunners ulcers.I know my IC has got worse, the pain,  and my symptoms are much worse. I just want relief, each of my hydros have given me some relief, so ill keep having them as long as I’m getting relief. My pain is my worst symptom so even if its only 2 or 3 months of relief, it’s worth it so I’m not in pain 24/7.
    My uro had put me on some medication, i can’t remember the name right now, ill later write a entry about all the meds and treatments ive tried and what has and haven’t worked for me. The last time I met with my uro he agreed if I wasn’t getting a lot of relief from the new meds that he would do another hydro, so when I met with his assistant the end of March that’s what we decided on.
      She reassured me that this one he won’t be doing a biopsy, but a urethra dilation which he hopes will give me some relief. She was so kind and so understanding, she knows im running out of options and that I don’t want to have to have these procedures every couple of months, but  told me they will do all they can to help me come  up with long term treatments plan. I can only Hope. My last hydro was tough recovery. So I pray with all my heart this one isn’t as tough road.
   I’m on no pain meds for my IC. Because im allergic to a lot of them, others dint work and others gave me too many side effects. Were all so different in the way our bodies work and how we each respond to treatment. She did talk to me about the possibility of a pain implant ino my spine, it would have little to no scarring. Unlike the interstim, I can’t have that done, I have sever adhesions from scars and that surgery would not be good for me to have.
    On one hand I feel like a Pro when it comes to having surgeries, ive had back surgery when I was a teenager, I had cancer (fibromatosis) in 04 and my surgery lasted 11 hours, so compared to that this is a walk in the park on a sunny day. Ok I know that’s not the case, but im a survivor and if I can get through that surgery and then in 05 having another one that landed me in the hospital for almost a month and half, then I can and  I will Get through this procedure.
  Yes im a little nervous, but I know God will carry me through, I have a army of prayer warriors my ic family and my hubby and family and friends praying me through. Were all on different stages in this journey, we need to keep pressing forward, one step in front of another. I can’t take all your pain away, gosh I wish I could, I would in a heartbeat.
    I will do all I can to continue to encourage you all, and remind you not one of you are alone on this journey; I’ll be here every step of the way. We will finish this race that’s set before us, remember we don’t have it all together, but together we have it all.
Any way I can pray for you it would be my honor to do that for you, please contact me on here, or email me at natalieMacangel@gmail.com  May God richly bless you and hold you close in his embrace! And remember YOU all are the Reason I do this… I do this blog to  be your voice and speak out about Interstitial cystitis~

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