Im having the Interstim Trial.



Good Afternoon readers; I hope you all are doing as good  as can be expected and I pray for you all, whether I know you from face book or not! Today’s entry will be a personal update about my own journey with IC and what ill be facing over the next couple of weeks. In a previous entry I posted about the decision I had made about going for the interstim trial and if that was successful, then getting the intertim implant. My insurance was fighting me getting it, but my Urologist went to bat for me, ordered all these tests and pushed until we got the answer we needed, more importantly God was on my side and He heard all the prayers going up on my behalf.
        I finally singed the consent form few weeks ago and my trial is scheduled for August 23rd. and ill be going for a follow up August 26th to see if the trial has been successful. If it is then I go for the actual implant surgery August 30th.So many emotions going through my head at this time. I feel like im a on a emotional rollercoaster ride. This has been something that my uro wanted  me to get for the  last 2 years, but I fought it for awhile, hoping there was another answer, but without  finding anything else that I haven’t already tried that has not worked or that im allergic to has been very hard
     .  My IC is stage 4, meaning that doctors have tried so many medications, treatments, and procedures without hardly any relief and my last hyro/cstoscopy last may showed that my bladder capacity is getting smaller and the inflammation and redness is much worse than my prior ones. I hope, and above all I Pray that this is the answer ive been looking for, it helps some patients and other patients it doesn’t help or they have complications.
      This has not been something ive gone into lightly, through much prayer, support from the IC community those who both have had success and those who haven’t and much research , both my husband and I feel this is the right route to try, because I know my doctor doesn’t want me to face having a bladder removal.

    I thank God every single day that I met everyone I have from the IC community, people who changed my life for the better, even through the difficult road of having this disease. You guys hold me up with your prayers, you offer words of strength and comfort when I feel like I can’t possibly take another step. I made a promise to myself when I was diagnosed with IC that I would never judge another based on what did or didn’t work for them, ill offer support and advice if they ask, but what works for one , may or may not work for another.
    
     Im just trying to live in the moment, trusting god that He brought me this far and trusting God with the unknown, not trying to dwell on the what ifs, because that is unhealthy, yes im exited for the very real possibility this could work for me and I could get back to work and go back to college, but im also scared that what if I got my hopes up and it don’t work, or there are complications and I can’t go through with it because of those complications. Yet we don’t know, just live for today and trust God, if it doesn’t work, well I won’t be worse off than I already am right now. But I refuse to play that game of what ifs and get depressed.

    Ive always wanted to do more for raising awareness and if it works I still want to be a advocate for IC and do all I can to raise awareness for that cure that we all pray for every day, whatever the outcome I will still be that voice for you all, I will not forget my struggle and more importantly I WILL not forget you! All I ask of you is that you lift me up in prayer as I start this journey and ill keep you all updated as I can each step of the way! Keep shining beautiful warriors and  may God bless you and keep you, until I write again, all my love and prayers for you all!

Comments

Post a Comment

Popular posts from this blog

Poem~ "Not Another Day"

                       Good evening readers,I know its been awhile since I wrote in my blog and I apologize for that. This entry won’t be a regular entry I feel led to share with you another one of my poems to encourage your weary souls. I know that a lot of my IC and fibro and many suffering from chronic pain are dealing with a lot, their health is failing, and they feel overwhelmed, pressed down from so many different angles.       Today my pain is so severe, I was late getting my period, and we know how that flares our IC, but I forced myself to go outside and just sit in the sun for a little bit. It was a time of refreshment and peace. The sky was so blue, as blue as can be, the sun was so warm on my face and the clouds so puffy. I then spent a hour just reading my bible, I felt the Holy spirit drench me with His peace. I put myself aside and ...
Read more

I Give Permission

  Put away that smile and brave face. We are not required to stay strong, we all feel weak at times. There is no shame in this. There are more than enough days that I lay in bed and just cry, until I no long have tears to cry with. I cry because of the relentless pain, I cry because I want to be free of this monster that tried to wreck havoc on my body. It does to my body in many ways, but I refuse to let it do that to my soul. This is about giving ourselves room and permission to cry and to let it all out. I need to be honest with myself, I hate this I really do, and WE all do. It’s not fair it feels good to be real and raw and speak it the way it is. I know many of you will be able to relate to this. The day’s I’m bedridden, that’s tough. But I give myself permission to not be on top of it all. It’s ok to cry its ok to breakdown, I give you permission. I’m sure you’ve heard this before; TEARS are a cleansing to the soul and spirit. God gave us tears, it he wanted us to always ...
Read more

Trusting People to stand by you when you suffer with Chronic illiness

Trust There are two reasons I felt compelled to write on trust. Trust is like a beautiful piece of china: once it’s broken it’s hard to repair.   You can try to put the pieces together but it won’t look the same. There are two aspects of trust I want to touch upon in this entry. The first is, trusting God and letting go of your fear of the unknown.   The second is trust within the relationships we have with family and friends.                 We are human, we are imperfect, and we fall short of expectations every day of our lives. Regardless, God loves us - no matter what - even with all our flaws and broken down bodies.   Living a life with a chronic illness like interstitial cystitis is not an easy journey by any means. The scriptures remind us how important we are to our creator. In Luke 12:22-34, Jesus talks about the flowers of the fields, and how they don’t toil or spin.   God clothe...
Read more