Our Pain Through the Eyes of Others.....
Good evening dear readers.I'm sorry ive been away for so long, but we all know life happens and the hours slip by us and then before we realize it, days turn into months.As much as i love blogging, i was in some kind of slump and didn't have the motivation to put my thought to paper.thankfully im back and im going to try to write at least a few entries a month.
Topic that i want to address is how others perceive our pain. how they see us and how we can do our part in educating them and doing our best to keep open communication open and talk about what we go through, help them understand, so their perceptive can be clear.Many will have their eyes open and many others will either refuse to see or are just scared of what they don't understand.
Ive dealt with IC and fibromyalgia and others painful conditions for many years now.I have a much better grasp myself on what they are all about, compared to when i was first diagnosed.One thing ive learned over time is the more i understand, the more i research, the more i advocate for myself and others, the better understanding my loved ones and friends come to understand me and what i go through.
Do you ever ask yourself how do those in my life perceive my pain?Or do you just assume people dont care if they put up walls between you and them or say something they dont understand.The truth of the matter is people don't understand, what they dont know.We can do our part in helping them.Some may think were lazy, ive had people say cruel things to me, for example...." its not that bad" " if i can get through pain so can you","there are others worse than you" the list goes on and on, you all know where im coming from and im sure at some point each and every one of us have heard these cruel knife cutting remarks, that cut deep into our souls.
We didn't choose this life of pain and chronic illness, it was a card that was dealt to us and were doing the best we can to just get by each day.Truth of the matter is i dont just want to get by, i want to live this life ive been given to the fullest, to the best of my ability.Part of living to the fullest is helping those who love us, understand, its so easy to get angry when someone we love and loves us, responds by pushing us away or getting angery at us or saying hurtful words.
The more those we love can help us, by us helping them, the more of a opportunity we have to live our life with arms wide open and dance like we know all the steps.cherish every moment and live each memory over again in my memories. i recall a couple years ago, i had gone shopping and my IC and fibro was really flaring, to the point i could barely walk so i took my cane to the store as i was getting out of the car i go some of the most dirty looks from some individuals.
I felt humiliated, and i heard the lady whisper to her husband, why is she using a cane, she looks too young and healthy, total ignorance was my thought, anger and frustration. Sadly i didn't speak up that time.Yet there have been quite a few times since then that ive been in a situation where my urgency and frequency was acting up much worse than now, prior to my interstim procedure and i spoke up when i got some dirty looks, stares and words i explained what i had and why i had to keep running to the bathroom, a few people shrugged it off, but others apologized and wanted to understand and know more.
Its all part of the process of bringing more awareness of this disease to the forefront and getting people to openly talk about it, we cant speak with shame, we cant hide away, we have to speak, we have to tell our stories and help those in our lives understand what a life altering, painful disease this is.
That first conversation might be tough to start, but pray for Gods guidance, pray that He gives you the words to speak.If we want change, we have to be a part of it.you might find out that some who have turned deaf ear to you, its not because they are trying to hurt you, but they might be scared, help them understand, share with them and be honest, words can hurt, as we educate ourselves, help educate them, so they can perceive IC with love and compassion.
Topic that i want to address is how others perceive our pain. how they see us and how we can do our part in educating them and doing our best to keep open communication open and talk about what we go through, help them understand, so their perceptive can be clear.Many will have their eyes open and many others will either refuse to see or are just scared of what they don't understand.
Ive dealt with IC and fibromyalgia and others painful conditions for many years now.I have a much better grasp myself on what they are all about, compared to when i was first diagnosed.One thing ive learned over time is the more i understand, the more i research, the more i advocate for myself and others, the better understanding my loved ones and friends come to understand me and what i go through.
Do you ever ask yourself how do those in my life perceive my pain?Or do you just assume people dont care if they put up walls between you and them or say something they dont understand.The truth of the matter is people don't understand, what they dont know.We can do our part in helping them.Some may think were lazy, ive had people say cruel things to me, for example...." its not that bad" " if i can get through pain so can you","there are others worse than you" the list goes on and on, you all know where im coming from and im sure at some point each and every one of us have heard these cruel knife cutting remarks, that cut deep into our souls.
We didn't choose this life of pain and chronic illness, it was a card that was dealt to us and were doing the best we can to just get by each day.Truth of the matter is i dont just want to get by, i want to live this life ive been given to the fullest, to the best of my ability.Part of living to the fullest is helping those who love us, understand, its so easy to get angry when someone we love and loves us, responds by pushing us away or getting angery at us or saying hurtful words.
The more those we love can help us, by us helping them, the more of a opportunity we have to live our life with arms wide open and dance like we know all the steps.cherish every moment and live each memory over again in my memories. i recall a couple years ago, i had gone shopping and my IC and fibro was really flaring, to the point i could barely walk so i took my cane to the store as i was getting out of the car i go some of the most dirty looks from some individuals.
I felt humiliated, and i heard the lady whisper to her husband, why is she using a cane, she looks too young and healthy, total ignorance was my thought, anger and frustration. Sadly i didn't speak up that time.Yet there have been quite a few times since then that ive been in a situation where my urgency and frequency was acting up much worse than now, prior to my interstim procedure and i spoke up when i got some dirty looks, stares and words i explained what i had and why i had to keep running to the bathroom, a few people shrugged it off, but others apologized and wanted to understand and know more.
Its all part of the process of bringing more awareness of this disease to the forefront and getting people to openly talk about it, we cant speak with shame, we cant hide away, we have to speak, we have to tell our stories and help those in our lives understand what a life altering, painful disease this is.
That first conversation might be tough to start, but pray for Gods guidance, pray that He gives you the words to speak.If we want change, we have to be a part of it.you might find out that some who have turned deaf ear to you, its not because they are trying to hurt you, but they might be scared, help them understand, share with them and be honest, words can hurt, as we educate ourselves, help educate them, so they can perceive IC with love and compassion.
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