Fighting for those treatments~part 5 of my IC story~



                                Hello my Beautiful family, my readers, I hope today has not been too bad of a pain day for you. Before I jump into the next part of my IC journey, I want to just say how much I enjoy doing this for you. It makes me feel good to know that I can use the gifts God has given me to encourage you on this very tiresome journey we all face. When I really think about it, it’s very therapeutic for me to write out all these feelings. I feel to really connect with another human being and understand the pain, whether it be physical or emotional. You need to empathize not just sympathize with them.
                             So my journey continued, So many times in life we think we’ve hit rock bottom, we then actually realize were still falling, with that being said, when we fall and we do hit the bottom, the only place we can go from there is up and that is very reassuring, it might not happen overnight, but the light at the end of our very long tunnel will shine, the rays will peek through and you will be able to get back up and push on. Not only did I realize through this trail that I finally hit rock bottom, but I realized Jesus was my rock, He is the rock that’s higher than I.
                        I hit the bottom, now not only was I fighting this disease, but I was fighting my insurance company for treatments, I thought is the end, or the beginning g of the end? Do we ever really know how close we are? I was praying my brighter day, would be just over the horizon. I had years of a wrong diagnosis, then It took me so long to get that proper diagnosis and find great team of doctors that knew and understood IC  for  what it is and that I trusted, only to have it taken away from me.
                       I had to fight 4 times for my Treatments; it was either getting medical transportation to my doctor or having the treatments stopped all together, because my insurance did not feel I was making the progress they felt I should be making. It was beyond frustrating. I know there are some of you right now dealing with this. Don’t give up fighting is what I’m going to tell you.
                       It’s tough enough dealing with a disease like interstitial cystitis, then on top of it trying to fight a insurance company, who can be very heartless and that can cause so much stress. So if  this is what you’re dealing with, don’t give up fighting, get those doctors notes in details and be your advocate, fight for what you need and what you deserve a life of quality, no one should be denied treatments. My heart breaks for those suffering like this, because I know how overwhelmed you feel. To face the unknown is scary place to be, but remember, you’re not alone, God walks beside you and there are those who have walked this road and know what you’re feeling.
               During this time I had a lot of tough days, when I felt totally defeated. Like I was up against the wall and the odds were stacked against me.  I thank God I had him and my family, my husband, and my friends and my IC family routing me on. Encouraging, me each step of the way. At the time I didn’t know when that storm would pass over, but I held onto Hope. And that Hope became my determination to fight, to be my own advocate, and then sharing my story then, so others would know its happening to a lot of us.
               Sometimes we have to step outside of our comfort zones to get the help we so desperately need and that’s exactly what I did, I wrote to my Senator and he helped me, I wrote him my story and he   pushed so I could get what I needed.
         Finally I was able to get those treatments back, I continued on to see my doctor at that time, I’m now in a different phase of my journey, Some of those treatments have stopped working for me, I did all I could do with internal physical therapy, for my PFD pelvic floor disorder had to stop seeing one of my Uros, but God brought another into my life and he is so good. He really cares about my well being and helping me fight this monster, because   that’s what IC is .I also see another good thing of what I went through, because now I can encourage   others dealing with it to fight and not let the insurance companies walk all over them. Remember this there is more to you, than IC and you deserve to have the best life you can have even with all your dealing with, why because YOU’RE worth it. You have a voice, let it be heard, don’t sit back…FIGHT for what YOU NEED~

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