People Ask is Remission Possible its not the same as Controlling Symptoms~

Good evening readers’ know that its been awhile since I wrote here in my IC blog and I truly apologize for that. Between my own overall health and going to my husband’s numerous doctor’s appointments for  the weight loss surgery he will be having, plus there was a death in the family things have been very hectic. But I have not forgot about you all, so I’m BACK and I’m excited to be back.

The Issue that I want to discuss that ive seen a lot of mention of it within the IC community is”Is Remission possible with IC” ive seen so many divides within our family. I have seen friendships dissolve over this, and it’s so sad. There is still so much, the medical community does not understand about interstitial cystitis. There is still so much that we as the patients still do not understand.

I view IC as a Evolving disease, its constantly changing, in a lot of cases it progresses and gets worse over time. When I look at the IC community I see my family, we deal with so much on a daily basis, that having barriers and divisions amongst us does nothing to benefit us. I do my best to uplift and encourage you all.

   Were all on this journey, it may look different for each of us, but instead of fighting over whose right, its really about helping each other along, giving that arm to hold another up, when they are ready to cave in. it’s about  sharing ideas with each other. a lot of times I get so much informative info from others that I take what works for me and leave the rest.

 you ask do I think remission is possible. I have mixed feelings about this. We know as it stands, there is no cure for IC.one of the most important things anyone diagnosed with IC should learn is that IC affects every single person differently, what works for one, may not work for another. Its not right to force our opinions on others. It is important though for ALL of us to educate ourselves about this disease, don’t wait for others to do the work for you. Be a voice, be a voice until your heard. Use your voice for change.

IC cannot be cured right now, but that do not mean that one day there will be a cure for us .Research is being done, but we need more, that is why awareness is vital to the outcome.  It means we keep pressing forward. The more we learn about ourselves and how ic affects us individually, the better our doctors can treat our symptoms. What flares us, what foods trigger us?

There are times that a person can get their symptoms under control, because I strongly believe that IC may be a Autoimmune disease. Just because you control your symptoms, does not mean that the IC is in remission. One wrong food, some kind of stress can set off your body into a another vicious cycle of relentless pain and symptoms, I think we’re all working towards the goal of controlling our symptoms the best we can, by diet, exercise, treatments, and stress management, sadly that’s not enough always. Its not a answer that’s wrapped in a neat little package, and that the end of it, its much deeper than that.

Sadly, that is not the story for all of us. I wish it were. So when you ask me is it possible to go into remission its more that the symptoms lie doormat in your body. I have heard of woman who were symptoms free for years and then it knocks again and tears through with a vengeance. The best way we can deal with IC is doing what we are doing, the best we can. We can learn from one another in gentle ways, keep in mind your story may not look anything like mine. Or vise versa.

I think its also important to take part of research studies when given the opportunities, because this is a tangible way we can be part of the change, the awareness, finding that cure. One day we  will look back and a cure will be found, until then. Keep learning and be gentle with each other, make the choice to do your part of the change we need. Embrace each moment, when you’re not flaring and live life to the fullest, the best you can, even if its only brief moments  of your beautiful lives!