Series~Part 1 Stages of Coming to Terms with IC~



       Good evening my beautiful readers. I pray your pain levels are manageable today. I’m starting a series on the Process we go through to Acceptance of our disease. Which im very excited about. Before I go any farther in this entry, please understand by accepting our diagnosis, does not mean that it defines or confines us, it simply implies that we’ve come to a peace about it and were learning to deal with the physical changes and the emotional changes that are taking place in our lives.
      So the first stage we will discuss is Denial; does it help or hurt our diagnosis? One thing to remember is its not just in death that we grieve, we can grieve who we once were, we grieve over lost relationships, loss of career, loss of a life that we once lived, what has been taken from us. What we feel like we can’t give to our children or spouses or friends, like we once did.
    That day you walk into your uros office and, the Words on his or her lips are Interstitial Cystitis. No this cant be happening. Not me, not now. The thoughts overpower your mind. And the tears start to make their way down your face. You think if I just deny this, then it will go away. Can this disease really have no cure, though some find themselves in remission, if only we all could be that fortunate?
   Its tough to have that kind of curveball thrown, at the most unexpected time. Sadly that’s the way life goes, there are so many things that are out of our control. So we just  decide to not face it at all, we run a million miles in the opposite direction, hoping, praying that it never catches up to  reality, yet it is reality, but were scared, scared of what this will mean. I understand ive been there. Some of us are there now; others are father along in this journey to acceptance.
    How many of you have asked yourself these questions, when you got your diagnosis? What are you afraid of? What will happen if my IC doesn’t get treated, then what? I need to give myself permission to feel these feelings! Identify irrational beliefs about your situation. Choose to help yourself by writing out your feelings on a daily basis, journal your journey, through this unknown road. Find yourself a support group online or in person if your community has one.
    No one wants to deal with a disease, especially one that is so unpredictable like IC.Its a process, but remind yourself, it won’t happen overnight so don’t be to tough on yourself. And talking out your feelings is very important part of this process, that’s why having a understanding and compassionate Uro is so important, and talk your bad days out with your IC family.
    Were in this together, Denial is part of grieving, in this case grieving what was, who you were, but don’t let it DEFINE who you are now, yes you will change, but make your way through, gently. Were all fighting this Battle, but our paths looks somewhat different? Don’t let Denial stand in your way of the Life you can have even with IC! when we don’t want to deal with something, we tend to push it down deep within our soul and heart.
      We refuse to face it, we turn the other way. Im here to reassure you its ok to feel, we don’t want this, but there is hope and there is treatments, we have to use our emotions in a positive way to fight back, use them all as motivation to get the word out. More and more individuals are being diagnosed with this terrible monster of a disease every day. If we keep running, if we keep denying our feelings, instead of learning to come to terms, we are denying ourselves the help and support we so need in this battle. Its ok to feel, its part of the ongoing process of coming to terms, but don’t let this denial take you down a path that you can’t get off. Take it One day, one moment at a time!........Stay Tuned for next Part of this Series~

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